First time parents / NICU parents

Hi there, we are first time parents and NICU parents… What a wild ride has parenthood been for us so far! Our little one showed up at almost 26 weeks and has been in the NICU for close to 3 months now. Our baby’s progress was good until about a month ago, they needed to perform an emergency surgery (abdominal) we were then told everything looked good and that the team only needed to put everything back into place as the intestine was kind of herniated a little and that caused a blocage. That was supposed to be good news since they didnt need to remove any part and we were told that it might have been cause by a NEC that healed which seems to be the #1 challenge for preemies. Fast forward to a week ago when they started feeding her again, it went on for a couple of days then she threw everything up and they are suspecting an intestinal occlusion and we were basically told our baby will most probably need another surgery in a couple of weeks. We are completely lost and feel like we’re alone in this…Any parents out there that went through something similar and feel like sharing their story with us? We could really use some light and hope in what seems like an endless journey. Thank you via /r/NICUParents https://ift.tt/9WrZ03V